Study Details
Studying People with Childhood-Onset Systemic Lupus Erythematosus
(IRB#: IRB_00049568)
Childhood on-set Systemic Lupus Erythematosus (cSLE) is a complex autoimmune disease often causing pain, fatigue, and mood disturbances. This study wants to determine the risk factors of cSLE due to socioeconomic status, behavior, or access to care. The study is also gathering information about the transition period between adolescents and young adults with cSLE. People in the study will complete an annual survey over the phone or online. The survey will collect information to help create specific programs and treatments to prevent short and long-term cSLE. The information will also inform future health policy decisions about healthcare coverage for young adults with chronic illnesses. Participants are compensated for their time in the study.
- All genders
- Over 18 years old
- Volunteers with special conditions
- From Home
- Paid
Who can participate?
Gender: All genders
Age: Over 18 years old
Volunteers: Volunteers with special conditions
Location: From Home
Inclusion Criteria
- Diagnosis of cSLE
- Ages 18 years and older
- English or Spanish speaking
Will I be paid for my time?
Yes
IRB#: IRB_00049568
PI: Aimee Hersh
Department: PEDIATRICS
Approval Date: 2011-05-26 21:07:00
Specialties: Rheumatology